Androgen Insensitivity Syndrome Support Group (AISSG)

On Boxing Day 1994, an AIS woman in her mid-30s was searching for information on AIS in her local medical library on the west coast of America, having received the usual (at that time) 'blank wall' from doctors when it came to requesting information and contact with others. She was pleased to find an article, Once a Dark Secret, in the British Medical Journal and to find that the subsequent issue of the journal contained a response letter from a doctor. She photocopied the pages, and was reading them in her car at traffic lights when she realised that she'd failed to copy an additional page which contained the major part of second response letter from, as she put it, "....much more importantly, another AIS woman!" She rushed back to the library and found the missing page, which to her delight also contained the phone number for the AIS Support Group in the UK. She made contact just as the group was making the first issue of its newsletter, ALIAS, available - and in time to attend the UK group's first meeting in March 1995. And on her return to the US she started to set up a group there.

Bodies Like Ours - Peer Support and Information for people born with a body that is different.

Androgen Insensitivity Syndrome

[Androgen Resistance Syndrome, Testicular Feminization. Includes: Complete Androgen Insensitivity Syndrome (CAIS), Partial Androgen Insensitivity Syndrome (PAIS), Mild Androgen Insensitivity Syndrome (MAIS)]

Authors:  Bruce Gottlieb, PhD; Lenore K Beitel, PhD; Mark A Trifiro, MD

International Foundation for
Androgynous Studies Inc

	Promotes medical, social and educational research;
	Provides a media resource base;
	Actively disseminates information through scientific research, the arts and the internet;
	Encourages the active participation of artists in exhibitions which will draw attention to the humanity of androgynous persons;
	Creates a register for participants to facilitate networking;
	Advocates legislative change for the protection of gender rights;
	Recognizes the legal status of androgynous persons in passports, birth certificates, etc.;
	Encourages tolerance and inclusivity in educational curricula and the media;
	Celebrates diversity

Intersex Society of North America (ISNA)- Devoted to systemic change to end shame, secrecy, and unwanted surgeries for children born with atypical sexual or reproductive anatomies. We are working to end the idea that intersexuality is shameful or freakish. In the U.S. alone, five children are subjected to harmful, medically unnecessary sexual surgeries every day. We urge physicians to use a model of care that is patient-centered, rather than concealment-centered. ISNA needs your support to carry out our mission and goals! Donations may be made online using a major credit card.  ISNA is a 501c3 non-profit organization. All donations are tax-deductible to the full extent of the law.

mrkh-grrls · MRKH List

If you have MRKH -- Mayer-Rokitansky-Kuster-Hauser Syndrome -- or you are the mother of someone who does, you are welcome to join this list.

We are not only a support group, but a networking community dedicated to helping women with MRKH and raising awareness of this rare birth 'defect.'

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MRKH.org, Inc

A Resource for Women with

Mayer Rokitansky Kuster Hauser Syndrome

Also known as Mullerian Agenesis, Vaginal Agenesis, Congenital Absence of Vagina

This is the home page for the English section of OII.
The Organisation Intersex International (OII) is devoted to systemic change to end the fear, shame, secrecy and stigma experienced by children and adults through the practice of non-consensual genital surgeries for people born with atypical anatomy, and the arbitrary assignment of a particular gender without an informed consultation with the individual concerned.

The Johns Hopkins Children's Center